Well:
12 years ago i got bit by fire ants which triggered a disease that laid dormant in me from birth which brought forth a disease called Charcot-Marie -Tooth which is a duplication of the peripheral myelin protein- 22 gene and having a duplication they cancel each other out so I started Having major Nerve destruction. Within 3 months I had to quit work. I've had 46 falls so far. It's a progressive disease with no cure ,so now I am at the point where I can just barely walk and spend most of my time in a power chair. It was just in my arms and legs for 10 years and the past 2 years it has gone into my core. Now only one lung is working as all of the nerves in the diaphragm for the right lung quit and I'm on down to the point where I only have 30% of my inhale and exhale pressure. Once it keeps going I'll just die of Respiratory failure.. It's also destroyed 50% of my hearing and the list keeps going on and on with things that are failing. 6 months ago I started having trouble swallowing as the nerves that trigger the muscles in the esophagus are being effected. I've now lost 17 pounds in the last 6 months, 3 last week. As the muscles go away I can see more veins everywhere, and my Dad's ring won't stay up anymore. There's nothing I can do but ride it out and then go "Home" on the "Other Side"
12 years ago i got bit by fire ants which triggered a disease that laid dormant in me from birth which brought forth a disease called Charcot-Marie -Tooth which is a duplication of the peripheral myelin protein- 22 gene and having a duplication they cancel each other out so I started Having major Nerve destruction. Within 3 months I had to quit work. I've had 46 falls so far. It's a progressive disease with no cure ,so now I am at the point where I can just barely walk and spend most of my time in a power chair. It was just in my arms and legs for 10 years and the past 2 years it has gone into my core. Now only one lung is working as all of the nerves in the diaphragm for the right lung quit and I'm on down to the point where I only have 30% of my inhale and exhale pressure. Once it keeps going I'll just die of Respiratory failure.. It's also destroyed 50% of my hearing and the list keeps going on and on with things that are failing. 6 months ago I started having trouble swallowing as the nerves that trigger the muscles in the esophagus are being effected. I've now lost 17 pounds in the last 6 months, 3 last week. As the muscles go away I can see more veins everywhere, and my Dad's ring won't stay up anymore. There's nothing I can do but ride it out and then go "Home" on the "Other Side"
to you on the other, will say a prayer for you tonight Marty
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